anybody explain kids celiac blood work?

[Idaboy]

My daughter had bloodwork done as part of a well child check up, she's 6. The results say "probable celiac and consider a biopsy". They've already scheduled an appointment with a GI specialist - but it's not for 3 months.

Her Tissue Transglutaminase Ab, IgA, S came back at 12.5 which is high and her Immunoglobulin A (IgA), S came in at 107 which falls within normal...but says celiac probable? Looks like those numbers could also flag dermatitis herpetiformis...and she's always had SUPER sensitive skin. She has no other symptoms.

j/w if anyone here has an educated opinion on these numbers that I don't have to wait 3 months to hear.

Why was the test initially sent? Due to skin symptoms? Agree with others comments, 307 and NealSO2 pretty much sum it up. Would get the endo biopsy.

 

[mtg]

I'd take the recipes!

For any, all that want them, put your email on here, or a PM if you prefer, and I’ll see what I can do to get them to you.

 

[doc holiday13]

Wild idea here.......

Remove all grains for 3 weeks and feed pre and pro biotics to rebuild gut health... In that 3 weeks learn how to make sourdough and only use organic flour. Why? In the USA, non organic flour is chocked full of glyphosate which if you get a high enough loading in your digestive system can cause inflammation that resembles other stuff. It takes 7 days for your body to completely purge toxins and 14 days to normalize and balance gut bateria

How do I know this? I have 2 seperate friends that were gluten free for the last decade because "celiac" They can eat a true fermented sourdough made with organic flour and have ZERO issue

 

[kpk]

Why was the test initially sent? Due to skin symptoms? Agree with others comments, 307 and NealSO2 pretty much sum it up. Would get the endo biopsy.

She had a well child check up (does this yearly) and they ran complete bloodwork as it had been 5 years since her last. At some point she must've told the doc she'd been using the bathroom more than normal lately (I think she had a stomach bug as it's been going through the schools). I'm guessing that's what got additional testing done as she really has no symptoms. She occasionally gets rash behind her knees and was SUPER sensitive to hand soap, lotion, make up, etc. That's calmed a bit over the past year or so. though.

 

[westsloper]

My son was diagnosed with celiac at age two. He had stopped growing, and we went to a few doctors who were dismissive of our concerns until we finally found one who requested a blood test for celiac. I don't remember what all the numbers mean, but the one thing I'll say is definitely do the biopsy before accepting a celiac diagnosis. I got tested too - my numbers were borderline and almost high enough for a celiac diagnosis, but a biposy confirmed that I don't have it.

Really important - as others are saying, don't go gluten free until after the biopsy is completed

It's been tough but not as hard as we thought it would be.

 

[holmesac89]

Some great information being passed along in this thread. It’s also fascinating to see how many other members have celiac. A type 1 diabetic and celiac here.

 

[johnnycake]

Good luck, and I'll chime in repeating what others have said: don't change the diet until after the biopsy. My kids both have celiac, and multiple others in my extended family. It's so much easier these days than it was even just 10-15 years ago.

 

[mtg]

I just sent the email of recipes and tips that I have to those that requested it. Let me know if there’s any other takers.

 

[Mojave]

I have one that we are going to switch to gluten free. Wife is doing gluten free and her thyroid BS is gone.

Kid is 12, and she gets moody if she eats the wrong thing.